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Lucia
When they asked me to write something about our daughter, I had already We had a perfect beautiful first child, Maria. Four years later, we got pregnant with our second child and she was going to be another girl! We were so happy. We named her Lucia We had no idea we were having a child with DS. I had a perfect pregnancy and I had done everything to be as healthy as possible. When the day came, after 30 hrs of labor, I went to a c section! When they brought her to me, right away I could sense something was not right she looks very different, she looked as if she had DS! But that was not happening to us! But sure enough when I was in recovery, my husband and family had just gone home to rest when I hear a knock at my door. Not the Doctor not the nurse, someone I had never seen, wanted to ask me questions about my family background! That was the last piece of the puzzle for me, and I just asked, Does my child have DS? She said we suspect. Of course we were devastated I can t tell you how sad I was. The world had come to an end, there was no future or worse what future. The first three months were very hard for me, I was mourning the Lucia I had envisioned. I have to thank my husband and family and friends for their support and strength, and other parents of kids with DS. Looking at other surviving families they made me feel that if they could still be smiling so would we. But the most healing came within Lucia !!! I fell in love with her! She was my perfect child! I know there are going to be bumps along the road but hey! That is what life is all about, and keeps us going and growing strong. Lucia is three years old, doing very well in her development and is currently attending a Typical preschool five days a week, and getting PT and speech at home. She is a shining star for everyone that meets her. I feel that Maria (7) and our new Franchi ( 7 months ) are so fortunate to have a sister like her. They are learning about differences between one and other, hard work to accomplish a task, love and kindness. Lucia loves to play with them, follows Maria and copies her all the time, she is a great little mom for Franchi runs to get him a toy every time he cries. She loves Barney of course, music, dancing, climbing, reading and playing with other kids. She is more like any other kid than different. There is no limit to what they can accomplish, no limit. Give yourself time to be sad, and mourn, and then enjoy your baby! he needs you and your love more than any therapy ,that is the best one . Congratulations on your new baby ! Love to you, Maria PS. I was so hungry for pictures of kids with DS. I loved to see them in many different situations so I decided to wallpaper our letters with them. For all t |
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Triangle Down Syndrome Network
read
the handbook that you have. I said to myself, what else can I add that has not
been said over and over in each story, and I got to the conclusion that in all
the stories there was a very hard time at the beginning and a happy
ending, and that it was good for you to know that, this is probably going to
happen to you to at some point . Knowing the ending ahead of time is good and
comforting. So there is nothing new in our story, just one more story to
validate that yours might be the next one.