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located in central North Carolina, serving families in Wake, Durham and Orange and surrounding counties

Membership recomendations

Through the TDSN listserve, members can keep in touch with each other and share information.  The information captured below represents some of the information exchanged.  It is listed here without any official sponsorship from the TDSN organization.  Comments or corrections send to tdsnmail @ triangledownsyndrome.org

Hurricane Katrina

Letter from the ARC of Louisiana
Goodwill Industries of Eastern North Carolina ; One of our training programs is a school-to-work job training program for high school students with disabilities.  Our students have been stocking flood buckets with cleaning supplies, gloves, etc. as part of a paid job training experience.  GCF Community Foundation - Goodwill Industries of Eastern NC is supplying flood buckets for the hurricane relief efforts.    Goodwill Industries and the GCF Community Foundation will be donating the supplies, labor, and shipping costs for these flood buckets.  They have set aside $20,000 already for this project.  100% of monetary donations will go directly to hurricane relief projects.  Donations can be to the GCF Community Foundation, 4808 Chin Page Road, Durham, NC 27703 or dropped off at any GCF Donation Center and store near you. 

 

Moving to the area - information for families with adult DS

Every county should have something like Single Portal, it may be called something different in other counties but that is what it's called here in Wake County.  It's at the County Department of Human Services.  It is the first contact point that anyone relocating should call to access services with an assessment being made, a plan to develop services appropriate to the individual, and then funding to carry out the plan (there is a waiting list not only to receive services but to receive assessments here in Wake County so this process can take a long time if someone is relocating from out of state, or even already living here; those moving from one NC county to Wake County will keep their CAP benefits).  CAP is the Community Access Program and is the funding source for these services and also waivers in children and adults who don't qualify for Medicaid so that they can access that program as well.  Even if an individual is receiving Medicaid waivers in another state, the benefits don't transfer from one state to another because the programs, although federally mandated and partially funded, are carried out by each state separately with each having it's own requirements and benefits and services available.   If they're looking for recreational and social opportunities, I'd suggest Parks & Recreation as well as Special Olympics.  If they're looking for doctors, I'd refer them to the Duke clinic; I know Family Support Network has a list of doctors that are recommended by other parents of children with special needs but most of them specialize in children.  Not sure if there's a similar list compiled by another organization for adults. (LM)

 

Donation possibilities:

As noted in the Sept./Oct. TDSN newsletter, the Food Lion MVP card can now be used to donate a portion of your grocery receipts to TDSN. You can add anyone to the list, no matter where in the country they live, on the www.foodlion.com.  I added my parents' MVP number this morning and they live in Wilmington. I'm hitting up my brother next for his number.  So if you know of a relative not already using their card for donations to a school or whatever, ask them about TDSN! Also noted in the newsletter article is the fact that TDSN needs at least 25 participates to remain on the organization list.

Events:

Special Olympics North Carolina is hosting 3 presentations of American
Girl Fashion Show on Saturday November 19 at the McKimmon Center in
Raleigh.  They are in need of models.  Models mus t eligible for
Special Olympics, but do not have to actually participate.  Models
must also wear girls size 6x- 10.  If you are interested or would like more
information, contact Jennifer Tabery @ 831-6640

DS related links:

Download an application for a handicapped placard from the NC DMV from:http://www.ncdot.org/dmv/vehicle_services/licenseplates/handicapped.html
Possible funding sources for assisted learning devices: http://www.abledata.com/abledata_docs/funding.htm  or http://www.ttac.odu.edu/Articles/minigrant.html
 

School information:

WakeSEPTA (Special Education PTA) just got off the ground last spring,
elected officers and we're working on getting the word out, so it's not
surprising that some schools and special ed teachers haven't heard about us yet. Our first general membership meeting is in October. Anyone can join the email group at www.groups.yahoo.com/group/WakeSEPTA.

 

 

Down Syndrome related merchandise:

Coloring book (about 8-10 pages) for students in about 1-5 grade.  It has cartoons that you color and simple positive info about kids with DS.  It ends
saying how you should treat a kids with DS (ask them if you can play with them, be nice to them, etc). It was created by a young woman who had a sibling with DS and thought it would be helpful. 
It can be "obtained" (don't know if you have to pay) by contacting the DS Association of Middle Tennessee of Nashville at 615/386-9002.  Info is probably on their website but i haven't checked.
Cruises for people with special needs:  www.support@cruisingforareason.com
Just popped up on the NDSS site is a form to send a message in support of
a Down syndrome awareness commemorative postage stamphttp://capwiz.com/ndss/mail/oneclick_compose/?alertid=7923196
For those of you that saw our products at the NDSC Convention in Anaheim,
our website is finally up and running.  www.321downstreet.com  The
products were received with a great response in Anaheim, it really gave us
motivation to continue this venture. We have fundraising packets for your
organizations and will package items for new parent packets.
DS bracelets and car magnets?  Looks like there are several out there, but the one at http://www.csdsa.org is really a nice design.  (NOTE - TDSN will be selling bracelets at the Buddy Walk.)

Our members in the news:

WB22 showing of Lynsey and familiy: Here's the link (slow to load and requires RealPlayer) for those interested in seeing our 15 seconds of fame:

General recommendations:

The National Highway Transportation Safety Administration recommends not using any carseats over five years old, even if they haven’t been in an accident.  The date of manufacture should be printed somewhere on the carseats.  I think this is because the plastic can become brittle from being in hot cars over the years so that they might shatter in an accident and cause more damage to the child from the shards as well as the impact than a newer carseat would.  http://www.nhtsa.dot.gov/people/injury/childps/newtips/pages/Tip5.htm

If you haven't already seen this video... check it out.  It's wonderful!

 

 

 

TDSN Info Line  - (919) 788-3646

Email: tdsnmail @ triangledownsyndrome.org or  Contact Us

Regular Mail: TDSN, PO Box 37305, Raleigh, NC 27627  

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